My Story
"There will be days where it will take all the strength we have as special needs parents to hold it together. On those days, believe in the promise of tomorrow and know
you are not alone."
Anonymous
Natani Jones
Mother, Long-term Caregiver, NTP
Co-Founder
Hello, my name is Natani Jones. I am originally from South Africa, a proud mother to three wonderful children, an avid tennis player, and a full-time, long-term caregiver to my oldest son, Trevor. Trevor is 25 years old and when he was 14 months he tragically fell from the arms of his father, sustaining a severe traumatic brain injury. In a split second, my life went from sheer joy to complete survival, and a very long journey in the trenches. Life became consumed with finding every possible modality to support my son’s recovery. My home became a full-time therapy clinic and I took on the role of every therapist. The dark years of post-traumatic brain injury were filled with a depth of despair and determination to do whatever it took to get my son back. Even if I lost myself in the process. Exhaustion, hyper-vigilance, and chronic stress crept in at every level and sadly, like most of you, my health and dreams were no longer relevant. As a veteran Caregiver with now over 24 years of experience on the journey, and as a Nutrition Therapy Practitioner, I have witnessed an underlying issue – a silent pandemic of caregiver burnout. Though not always outwardly noticeable, the symptoms of exhaustion from life in the trenches are a common thread among long-term caregivers. As the years passed, Trevor progressed beyond the initial prognosis of a vegetative state, but his beautiful cognitive mind is that of a preschooler. Not yet toilet trained, with limited understanding, language, and visual impairment, it became evident Trevor would need my caregiving for the rest of my life. I knew this need was so great and to do that I had to make my health a priority, and regain a sense of self to sustain the long journey ahead. By strengthening my resiliency and my immune system specific to the needs of being a caregiver, by balancing the ever-present challenges with enough good experiences, and putting in place what I call ‘handrails’ to lean on when moving through the toughest times, I have found that health is not just the absence of illness, but an abundance of vitality. Through intentional self-care practices, I have softened the pain associated with my grief and trauma and embraced this remarkable and humbling journey. I believe our beautiful caregiver spirits are incredibly resilient. With enough recognition, support, and nurture, we can come to a place of thriving even in the midst of such a demanding lifestyle. Welcome to CaregiverLove. We want you to feel known and we hope to serve and support you on your Caregiver journey!